Endorsements
Endorsements
Brain Injury Association of Indiana
"Moderate to severe brain injury has been recognized as a chronic condition and can lead to lifelong disability. Brain injury may leave an individual with various cognitive, behavioral, physical and emotional deficits that fluctuate, last and persist. Often times, individuals who have sustained a moderate or severe brain injury will require life-long care and assistance due to subsequent difficulties they have as a result. This can range from basic assistance with activities of daily living to more complicated tasks such as financial, medical and overall health and wellness management.

Brain injury impacts the entire family unit and can lead to caregiver burn-out at a rapid pace with potential adverse effects on their health. Adequate funding, resources and supports are lacking throughout the entire
continuum of care for individuals and families affected by brain injury. Most often, any existing services and supports are front-loaded, with more options available in the acute stages of brain injury. In contrast, with
medical advances and improved safety and prevention measures, individuals are living longer with this chronic condition, yet the options for residential assistance and assisted living are minimal at best. Brain Injury Association of America estimates that about 5% of people living with severe brain injury have adequate funding for long-term treatment and supports.

Brain Injury Association of Indiana recognizes and supports the need for the state of Indiana to have residential living options for individuals with brain injury. These individuals and their families are in need of such facilities to access and occupy so they can receive support for the chronic illness of brain injury. The type of facility that the board of Villa Licci is proposing could result in a better quality of life for the individual with brain injury as well as for the caregivers and families directly impacted. Furthermore, with proper facilities available, development of potential comorbidities such as psychological and health sequelae that result in all involved could be decreased. Lastly, having access to brain injury-specific residential settings could reduce the costs to our state, both in potentially reducing costs in the medical and disability-related matters across an individual’s lifetime and possibly be cost-saving by reducing loss productivity, loss of earning wages and government spending.

Thank you for your support for this cause and for your attention to this silent, chronic disability."
Dan Chamberlain, J.D.

Cohen & Malad, LLP

Former Chair, Brain Injury Association of America (www.biaUSA.org)

President, Brain Injury Alliance of Indiana (www.biaINDIANA.com)
"A definition of the common good is the measure of success by which a project is judged.   In other words, a collaborative effort between survivors, families, and individuals that care about society and each other-working together to dream and to create a community that otherwise did not previously exist.  That community is Villa Licci.

Post-accident, a brain-injured person typically runs through a course of hospitalization, rehabilitation, and if successful, may return to a new life.  This is otherwise known as the new normal, where the survivor may look perfectly fine but suffers a constellation of symptoms related to the injury.  Traumatic brain injury is non-discriminatory and will affect all involved.  Each person is a member of this group as a TBI may affect anyone, anytime and anywhere.

A family member, caregiver or survivor, has been thrust into a new life without context or meaning.  How are you supposed to act?  What is normal?  What will happen next?  Will the behavior escalate?  Will my family member find worth, love, and success?  Success comes in little steps that add up to benefit not only the survivor but others that care too.

For almost 30 years, I have represented the spectrum of brain injury survivors and their families, understanding that each injury is severe.  Each injury is different.  Each person is different.  Each outcome is different.   As an attorney, I help my clients for the remainder of their lives when the unexpected happens.  One of my favorite clients said “my lawyer would help me the rest of my life.” We become a collaborative unit for the common good and provide support and answers to each other.

Why collaborate with Villa Licci?  Support (time, talent, and treasure) of the common good will benefit some of the most vulnerable populations in Indiana.  Brain injury survivors may possess the basic benefits provided by the government, health insurance, parents, kids, and support, but lack access to interaction with other similarly situated survivors in a residential setting.    A feeling of worth, independence, caring, and communication are certainly at the top of the reasons to support Villa Licci.

On behalf of my clients, friends, families, and caregivers, please support us in making a collaborative change for those that need and deserve it most."
Raeann Ray, PT

Co-leader of Brain Injury Survivors of Indiana.

28 years of experience with traumatic brain injury.
"One of the leading issues for TBI survivors is isolation. Having Villa Licci would help minimize this issue. Survivors would have the opportunity to spend time and build a community of friends with understanding of what they are going through. When they need down time they would have their own apartment to decompress and can rejoin when they are ready. It would be an ideal environment for this population to feel included."
James D. Sanders, LMFT, RBC

Behavior Consultant and Psychotherapist

Owner, Sanders Consultation and Counseling Services
"For those who have behavioral and cognitive challenges associated with an acquired Traumatic Brain Injury, I enthusiastically endorsed the option of living in Villa Licci.

As a provider of behavioral and counseling services to survivors of traumatic brain injury, I have experienced the frustration, dejection, and hopelessness of individuals who have experienced what we would consider a “normal” life, only to be interrupted by a devastating injury that was of no fault of the individual. This is an impairment that any person could experience when crossing an intersection, working in a precarious situation, or simply an unexpected fall. This makes the injury much more difficult for those of us without injury to accept- we could all be in the same situation. We are all vulnerable.

Individuals with Traumatic Brain Injury (TBI) are often struck down in the prime of life – 20s or 30s or younger – and have extreme challenges not only to survive but thrive. Because of the unplanned nature of this injury, the survivor has to rely on funding from government sources to survive. This is often just barely adequate and often requires the families to provide their own resources for the individual to be able to subsist. No one plans for such a situation.

Living at 35 years of age with your parents is certainly not what these survivors planned. Because the survivors have lived without the TBI impairments, they have great challenges to embrace the deficits and impairment and still push forward and carry on with life. Living with parents can be very difficult for adults, and parents are often forced to provide the primary care. Both will admit this is less than ideal. The parents much adopt a dual role of family member and caregiver, which can cause significant conflict. The survivor rebels against the implied age regression, where the parent is setting expectations on them. Imaging being a CPA at 35 and upon awakening, finding yourself living with your aging parents who are coaxing you to get up.

Villa Licci provides a welcomed alterative to living at home, indefinitely. The individual can live in a more integrated, normalized situation in which family members visit rather than providing primary care. The naturalized living situation promote independence and community integration which is not so consistent with living with family. Individuals can still receive needed supports. Socialization is a major loss for many TBI individuals. The type of residential opportunity provided by Villa Licci is age appropriate, socially appropriate and a natural component of such a living setting. Because the setting is not a “program facility,” individuals can obtain social affirmation and social needs without relying on family or staff to orchestrate this. There will be a need to work based on demonstrated need, so that individuals needing less support receive less support than individuals who require more. Currently individuals living with parents often have very few if any age appropriate social opportunities. The satisfaction with reaching the greatest level of independence and self sufficiently is worth the effort to provide this opportunity to our sons, daughters, friends, parents, and acquaintances."
Dr. Lance Trexler, PhD, HSPP, FACRM

Clinical Neuropsychologist and Executive Director, Brain Injury Rehabilitation Research and Program Development Departments of Rehabilitation Neuropsychology and Resource Facilitation at the Rehabilitation Hospital of Indiana

Clinical Assistant Professor, Department of Physical Medicine and Rehabilitation, Indiana University School of Medicine

Fellow, America Congress of Rehabilitation Medicine
"Depending on what method is used, we have estimated that Indiana has between 90 and 151,000 people with some level of chronic disability associated with traumatic brain injury. While not all people need a specialized residential program, for the following reasons there is a certain group with more severe disability that absolutely do.

• Traumatic brain injury results in a variety of challenges that include memory impairment, personality changes, and certainly difficulties with mobility that can all affect one’s ability to live independently.

• Associated with traumatic brain injury are a variety of comorbidities that can serve to worsen the level of disability associated with the original injury. In fact, recent long-term follow-up studies have demonstrated that as many as 30-40 % of people with moderate to severe traumatic brain injury may become more disabled over time because of the effects of these additional burdens on the individual’s ability to function independently. These comorbidities typically include a decline of psychological functioning associated with social isolation, which can then result in substance abuse, and potential for becoming reinjured. As an example, recent research has shown that people with traumatic brain injuries are 11 times more likely to die of an opioid overdose.

• Research has shown that many of the families of people with moderate to severe traumatic brain injury carry significant caregiver burden that can be deleterious for their own health which in turn can compromise their capacity to care for the person with the traumatic brain injury.

For these reasons, particularly moderate to severe traumatic brain injury can become a chronic condition. The World Health Organization and the Center for Disease Control and Prevention have recommended that people with a chronic condition:

• Have ongoing monitoring of their condition, particularly as this could lead to preventative interventions that target high risk (and expensive) complication,

• Promote access to service as needed, and

• Promote engagement of the person served.

The residential facility proposed by the Board of Director of Villa Licci could address the needs of people with chronic disability associated with traumatic brain injury, and therefore prevent some of the psychosocial and medical comorbidities that would serve to lessen their level of disability and reduce caregiver burden. This concept has precedent in other states, and studies have demonstrated their impact. These facilities are not however available in Indiana, and many other states, resulting in a significant disadvantage to Hoosiers with traumatic brain injury and their families.

Please support this initiative – I have heard the need for this kind of facility thousands of times over the last 40 years of my work with people with traumatic brain injury and their families."
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Phone: (317) 439-1836
Email: villalicci@gmail.com
Address: P. O. Box 6 Brownsburg, IN  46112